SCHINDLER: My sister Terri Schiavo was alive like Jahi McMath

Ethics of  brain death declaration

By Bobby Schindler  — Thursday, January 16, 2014

Much has been written about Jahi McMath in recent days. The 13-year-old Oakland, Calif., girl underwent surgery Dec. 9 to remove her tonsils. She was declared “brain-dead” after going into cardiac arrest.

Since that time, experts have opined on the ethics of the brain-death declaration, the family’s decision to transfer her to another facility, and the involvement of the Terri Schiavo Life & Hope Network in helping the family.

First, let me make it clear that our organization does not initiate contact with victims and their families or with the media. We did not contact the McMaths. We did not contact any media outlet.

We were contacted, and we responded. We respond because that is our mission — to provide aid, comfort and support for vulnerable persons, and to speak truth to power. No one faces more risk in today’s health care system than our medically vulnerable.

Continue reading at original source:
SCHINDLER: My sister Terri Schiavo was alive like Jahi McMath

Faceless Hospital Board Relents: Jahi McMath Can Continue Her Fight for Life

Jahi McMathOminous case is only the latest example of government and hospital boards taking private medical decisions away from families

PHILADELPHIA, Jan. 6, 2014 / – The parents of Jahi McMath won a key victory in the right to care for their daughter, Jahi McMath. Jahi entered Children’s Hospital in Oakland in early December to have her tonsils removed, and after complications from that surgery, was quickly declared “brain dead” by the hospital only a short time later, despite what her family was reporting as signs of responsiveness. Since that time, Jahi’s parents have waged a protracted legal fight with the hospital to force them to provide even the most basic care for their daughter.

Over the weekend, the hospital finally released Jahi to her parents, who have transferred her to a facility while they wait and watch for signs of improvement in her condition.

“This is a temporary victory in the ongoing fight to protect the right of parents and families to make private medical decisions for their loved ones,” said Bobby Schindler, Executive Director of the Terri Schiavo Life & Hope Network, and brother of the late Terri Schiavo.

“Sadly, these cases are becoming more common in our current medical environment, where government bureaucrats and faceless hospital boards, in the form of ethics committees, strip away the rights of parents and families to make their own decisions regarding medical treatment.”

Once Jahi arrives safely at her new destination, her condition will be assessed in greater detail, and medical specialists will begin taking steps to hopefully improve her condition.

“Jahi’s fight has only just begun,” said Schindler. “And there are many other families across the country who face similar battles. That’s why it’s so important that people fight back when an ethics committee tries to take away their medical rights. Given our current medical environment, with more and more emphasis on government, we all have reason to worry.”

The Terri Schiavo Life & Hope Network is a 501(c)(3) non-profit group dedicated to helping the medically vulnerable who are facing life-threatening situations. For more information, visit: lifeandhope.com

Remembering the Kids on the First Day of 2014

It’s a New Year!  A new beginning!  It’s also a time to reflect on the kids that need us to remember their plight and to fight in their behalf when the system forgets the human components called faith, hope and a sprinkle or two of compassion!

On a bright and positive note…

Connecticut Children’s Medical Center encourages it’s kids to be fighters! It encourages them not to give up in spite of the odds. Look at the spirit of these special children…

Then we have the opposite situation in California.

OAKLAND, Calif. (AP) — The family of a 13-year-old California girl declared brain dead after tonsil surgery is encountering difficulty in obtaining two surgeries that she needs to undergo before she can be safely transferred to a long-term care facility.

A lawyer for Children’s Hospital Oakland said Tuesday that it is unwilling to allow an outside doctor to fit Jahi McMath with the breathing and feeding tubes that the family has requested.

The hospital will not permit the procedures to be performed on its premises because Jahi is legally dead in the view of doctors who have examined her, lawyer Douglas Straus wrote in a letter to the girl’s family. ~Calif. family struggles to get surgeries for teenBy LISA LEFF and TERRY COLLINS – 01/01/14

So why are they unwilling? Why do they care? Is there some reason they are afraid to let someone prepare Jahi to be moved?

Connecticut Children’s Medical Center or Children’s Hospital Oakland? — Which hospital staff would you want caring for your child?

Jahi McMath Supporters Pressing for Release from Children’s Hospital Oakland

 Supporters of Jahi McMath continue to work for her transfer out of Children’s Hospital Oakland. The 13-year old patient who suffered massive complications after a surgery that led to a “brain death diagnosis” continues to show signs of life.

 

PHILADELPHIA, Pa., December 31, 2013 / — Under the direction of the Terri Schiavo Life & Hope Network, numerous organizations and individuals have been working on behalf of Jahi McMath and her family in relative silence for the sake of the sensitivity of her case.

At this point, Terri’s Network, Life Legal Defense, Angela Clemente & Associates, The Wrongful Death & Injury Institute, New Beginnings and others defending Jahi’s life, see that it is now appropriate to step forth publicly and represent the many supporters who have been working tirelessly to obtain Jahi’s release from Children’s Hospital Oakland and transfer her to a safe place.

Jahi McMath has been labeled a “deceased” person. Yet she retains all the functional attributes of a living person, despite her brain injury. This includes a beating heart, circulation and respiration, the ability to metabolize nutrition and more. Jahi is a living human being.

Together with our team of experts, Terri’s Network believes Jahi’s case is representative of a very deep problem within the US healthcare system – particularly those issues surrounding the deaths of patients within the confines of hospital corporations, which have a vested financial interest in discontinuing life.

“Families and individuals must make themselves aware of what so-called ‘brain death’ is and what it is not,” said Bobby Schindler, executive director with Terri’s Network. “Additionally, families and individuals must educate themselves regarding their rights as patients, the advance documentation that must be completed prior to any medical procedure as well as how to ensure best any patient’s rights.

“Every person needs to understand that medical accidents happen every day. Families and individuals must be more aware of the issue of accountability and patient rights.”

We continue to work toward Jahi’s transfer.

~*~

The Terri Schiavo Life & Hope Network was established by the family members of Terri Schiavo to protect the rights of people with cognitive disabilities. It has communicated with and supported more than 1,000 families, and has been involved in hundreds of cases since Terri’s Death. To learn more about the work of the Life & Hope Network, please visit lifeandhope.com

 

BREAKING NEWS!!!! RE: JAHI MCMATH

Judge extends life support for Jahi McMath until Jan. 7

The family of the 13-year-old Oakland, Calif. girl who was declared brain-dead after a tonsillectomy was desperately trying to move her to a New York facility until a judge extended her life support at the Children’s Hospital in Oakland Monday.Jahi McMath s Mom

A judge reportedly extended life support for a brain-dead 13-year-old girl in Oakland who is battling for her life until 5 p.m. on Jan. 7.

The family of Jahi McMath was frantically trying to work with a New York hospital to transfer the girl — who underwent a routine tonsillectomy at the Children’s Hospital of Oakland on Dec. 9 to treat sleep apnea — who suffered complications from the surgery, which caused her to bleed heavily and go into cardiac arrest.

The family’s attorney Chris Dolan said he is waiting to hear from the facility, which he did not identify because he did not want media attention to influence its decision.

Continue reading the article:  http://www.nydailynews.com/news/national/new-york-hospital-jahi-mcmath-hope-article-1.1561394#ixzz2p0fZRxRY

 

A Chance for Jahi McMath

Family wants to keep life support for girl brain dead after tonsil surgery

CNN Video

Carrie’s Take is:

Do we really know this young girl is brain dead?

Who says so? 

The ones that were caring for her when the medical crisis occurred?

Doesn’t one report say there is swelling of the brain? 

Why not wait and  see what happens after the swelling goes down? 

What’s the rush? 

This is a child.. a beautiful child… after all!!!

If there is an error to be made…

Error on the side of life!

Give this child & her family a chance to be right!

After all…

What if they are?